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Post by darlene on Feb 16, 2010 5:31:03 GMT -5
Hi My name's Darlene, my husband is Tom, ad my 2 year old son is Patrick. Patrick was diagnosed with AHC when he was just over a year. We all live in Java, Indonesia. My husband's from England (Sussex) and I'm Indonesian. Patrick has two passports Here's a picture of Pat. Please join up! Every piece of information we have found on AHC so far has been from the internet. Having a place where we can all share our experiences might be one of the best ways we can help our loved ones.
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emma
New Member
Posts: 7
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Post by emma on Feb 16, 2010 11:33:56 GMT -5
Hi , My name is Emma, my husband is Gavin and our Daughter Abigail is 18months old.
We live in SE London.
Abigail was diagnosed with AHC when she was 11months old.
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Post by tamasine winkworth on Feb 16, 2010 11:39:17 GMT -5
HI my name is Tamie, my husband is Dean & my daughter Grace is 16 we live in west london & Grace was diagnosed at 2yrs 1mth.
Jill & I have been friends every since. Hope to see you in June
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Post by Thomas Way on Feb 17, 2010 8:19:02 GMT -5
Hi Emma and Tammie and families How are you getting on Emma? I remember you were on waiting lists to get Abigail to therapy when we last emailed, and we were kind of going through the same thing here although probably for different reasons (there are no waiting lists here, just long queues, and with no guarantee of a trained doctor/therapist at the end!) We've found a good one now though, and Pat seems to be responding to his speech therapy. I hope Abigail is doing well. Looking forward to meeting you in june too.
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Post by Louise Prouse on Mar 15, 2010 9:35:59 GMT -5
thats a lovely picture of Patrick....can't wait to meet him in the summer...hope you all ok....speak again soon by email maybe...x
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Post by katearchie on Oct 22, 2010 19:01:05 GMT -5
Hi everyone! It's Kate and my lovely son Archie. We are from Poland. Archie was diagnosed with AHC at 2 years and 8 months.Now he is 5.and is getting better! It was nice to meet all of you last summer. Hope to stay in touch.
Kate
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Post by Thomas Way on Nov 16, 2010 5:21:26 GMT -5
Hi Kate and Archie
Glad to see you joined up and to hear from you.
Great to hear Archie is getting better ;D Do you mind if I ask, how often does he have attacks these days? He seemed so great when we saw him in the summer.
All the best, Tom, Lene and Patrick
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