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Post by Thomas Way on Feb 17, 2010 8:46:13 GMT -5
I'm aware that messages regarding medication could be open to interpretation and in some countries might have potential legal ramifications if someone decided to take advice that had ill consequences.
Please be careful and objective when volunteering information, and if you see a post regarding treatment or medication that you think might be useful for you, then take the information to a qualified doctor for a professional opinion.
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Post by katjat on May 22, 2011 15:44:25 GMT -5
Hi there! Our son Justus is treated with Flunarizine ( Sibelium ) and the usual epilepsy medicines. As a new feature his spinal fluid was ( once more ) researched in Holland. It came up with analysis of over 500 different particles, everything normal, exept pyridoxal 5 phosphate missing completetly! Everyone of us has pyridoxal 5 phosphate in our spinal fluid, but our son doesn't have it at all. As a result we are having supplement pyridoxal 5 phosphate, started few days ago. No one knows if this is going to get us anywhere but we have to try. I have high hopes that this could change everything but on the other hand, it might not..
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