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Post by Thomas Way on Feb 17, 2010 8:06:23 GMT -5
Actually, I guess we have a million questions that we could pose. For some reason, looking at Patrick sleeping on the cushion, one that springs to mind is: How old is the oldest known AH person? I guess this question is related to my fears about life expectancy... On a positive, Pat's been having a great few days. He's 2 years next month. His development is always in fits and starts but especially noticeable in the last week. His communication and speech hadn't really got started, but in the last few days he's been making a much bigger variety of sounds and linking some of them to requests (for food and dad usually!) He's also started standing without pulling up with his hands (he's been walking wobblily for 2 months now), and dancing a funny tap-dance whenever anyone says 'DISCO' ;D It's also been almost two weeks since his last attack. Yay Pat!
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Post by tracymccarroll on Feb 17, 2010 13:37:28 GMT -5
Joanne is 23 and we know a few older but not many i think there is someone in france in their fifty's. Ive always been told they have a normal life expectancy but as with any condition that interfere's with breathing or epilepsy there is always a risk of SUDEP. We think we are among the oldest in this country (uk)
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